Sunday, June 05, 2005

june update

Since the last entry Ethan has had a couple of respiratory appointments. Dr Armstrong changed the asthma preventer (seretide instead of flixotide). This has helped, he hasn't had a major attack since. He was also commenced on a nasal spray for a month. I thought this would be awkward to give as most kids don't like the feeling of it, but I tell him it's time for the spray and he points to where it goes and after the first nostril he points to the other nostril. He is very good when it comes to taking medicines. Dr Armstrong is happy with his progress and has put Ethan onto annual appointments!!

The oncology appointment went well. The abdominal ultrasound and chest xray showed no signs of cancer. The chest xray showed that his heart was bigger than average and that he has had heart is amazing after all this time that the xray people finally comment on such abnormalities!! The blood test was normal other than the alkaline phos which is still extremely high. Dr Downie is happy with his progress and we don't need to see him for 3 months when he has the same tests all over again.

Ethan developed a cold which increased the amount of snot, it started oozing from his ear! The GP diagnosed another perforated ear drum (same ear as last time). He has nearly finished his antibiotics and his ear is still running like a tap. He wasn't having fevers or he wasn't in pain, the only reason I knew was because of the ooze from his ear. He is quite a strong little boy.

Music group is going great. He enjoys going and he has even started to do the messy play. We are still waiting for the developmental check. It has been put on hold a little as the lady who runs the music group is one of the ladies who comes out. She advised us to start him in creche, this will help his social skills (advance his talking and play skills). On a Friday he goes to the creche up the road. He is in with the pre kinder kids. The first day was hard for me to leave him as there was a room full of big kids playing and little Ethan watching, none of the kids knew what he was signing! I knew the first day would be hard for him. The creche has been very supportive and have worked really hard to make him feel welcome. They have had training in makaton signing and have also learnt some of his made up signs so he has fitted in quite well. He has adapted really well and loves going.

He hasn't been to speech therapy for a while now. He will have a session next week. This will be good as he is now trying to babble a little so hopefully we can get some exercises that aid this.

The plan is for Ethan to complete 2 terms of music group and finish out the year at creche and then next year he will attend the Dandenong Valley Special School early intervention program (2 full days) and also do "normal" kinder (10 hours). So he will be very busy developing and catching up. This will depend on the final outcome of the developmental check but that's what is advised at the moment.

Evil Canevil graduated from the small chairs to the kitchen chairs, couch and coffee table! He has really started to climb and be more active. I try to encourage him to play outside on his bike or on the slide but it has been too cold especially with his ear. He eggs Adele on and vice versa, they are double trouble. We have two naughty mats!!

Finally here are some photos.....

Evil Canevil - leaping off the chairs

First post-chemo haircut

Tucked in to his new Thomas bed, thanks to Leisa

1 comment:

Anonymous said...

Sounds like things are mostly going great and hopefully Ethan will stay well to give him time to catch up with the average child that doesn't have as much to contend with. It is a shame that children have to learn to climb. My grandchild Mitchell had a fall today, off the kitchen chair, and knocked himself out. Had to spend 4 hours at the Casey hospital.
There is never a dull moment with children about.
Judi Maxfield