Monday, June 04, 2007

Day to Day happenings

It has been one year since we were told they couldn't fix Ethan's heart. The words go home and live month by month still ring in my ears but it has been a year and he is bigger and stronger than ever.

* Ethan's speech is still very slow to progress but he is making more sounds and more people are starting to understand him better.
* He is still very little and weighs next to nothing but he can eat!
* He tries to participate in boy stuff. He loves cricket and footy.
* He also loves cars. He is very good at directing and is a very annoying back seat driver!!

Heart: Ethan still has his blue episodes and runs out of breath easy. His oxygen levels remain at about 75-80% when he's well.
Lungs: Ethan has been diagnosed with bronchitises. A chronic infection in his lungs. He is on rotating antibiotics continuously. Since these started he has had less trouble and copes a lot better. Ethan's asthma is still all over the shop but he can tell us when he needs the puffer, which is a huge help.
Kidneys: He had a scan a month ago and all is well. His right kidney is coping very well and the left kidney bed has no signs of cancer.
Ears: He has an ear infection at the moment but otherwise he hasn't had one for a long time. It is his left ear which is oozing so he can't wear his hearing aid at the moment. (He thinks this is an excuse to ignore me!)

Ethan in the foam pit at Erin's gym party

playing in the car at one of dad's bike races

Playing with the dog during the race

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