Wednesday, March 10, 2010

haloperidol

Ethan had the Dr review at Monash as planned. After many discussions between 4 different units, it was decided to keep the morphine and midazolam at the current dosage and add haloperidol. This wasn't a decision taken lightly as haloperidol has major cardiac effects. It has been commenced at a low dose and can be increased if needed. Yesterday afternoon was again very trying and he required breakthrough medicine last night but he has since slept very well for him. It'll be interesting how today goes.

We have had a lot of people ask us whether he is in hospital or home. We have decided to nurse him at home until he passes away. If we wanted him in hospital we would still be there from our admission in January. Any review at Monash is just that, a review and home again. It is easier going to Monash instead of the GP and paediatrician etc as it gets done in one go rather than the running around between doctors and the chemist and then waiting on nurses to come etc.

6 comments:

Anonymous said...

Wishing there was something we could do to help and support.
Judi & Rob.

Anonymous said...

Thinking of you Jo and sending our love. xxx
Catherine, Greg, Mitchell, Bethany, Alyssa & Lily Brittain.

Anonymous said...

Jo and Luke you are amazing, your kids are so lucky to have you.
Always here, love The Kremers

Anonymous said...

Our love to you all and hoping the new drugs help Ethan be more comfortable and happier.
Love Anna, David & Molly

Anonymous said...

Each and every day I check the blog. And each and every day I am amazed at how strong you are. Thank you for teaching me that there is so much more to life. Hoping that the new medication has the desired effect without any of the serious side effects. Thoughts from Cassie Kennedy & Family.

Anonymous said...

Thinking of you always. The courage each of you show is amazing. Lets hope the new drug regime brings peace and happiness for the family so that all can enjoy Ethan. Love The Egans