Friday, March 12, 2010

leg trouble

The haloperidol was increased to 1mg yesterday. This seemed to take the edge off the mood swings. He seemed more content between the ups and downs. Things seemed to be better but then today happened.

The nurses came and they noted he was more settled. They came with a drug order in case Ethan has a catastrophic bleed. We have this drawn up ready to go just in case. It's a horrible scenario and I'm hoping it doesn't happen. The nurses had barely closed the door when things went pear shaped. He lost the ability to use his right leg. He was staggering in circles and crawling on the floor. When he did have the ability to walk his leg would give way and he'd end up the floor. This happened several times this afternoon. He then started having trouble going to the toilet. He was getting very agitated and angry. During all of toilet visits he started coughing blood. I'm not too sure what happened next but he seemed to forget how to cough, swallow and smile. He had a mouthful of blood which I had to scoop out. He sounded horrible. I wasn't sure what to do, what medications to give etc. I made a few phone calls to the palliative care team who were supportive. We finally got on top of things and he is now fast asleep. I wish and hope nothing like this will ever happen again but chances are they will.

I'm hoping all the extra medicine will help him sleep all night but I have this feeling he'll need to go to the toilet.


Anonymous said...

Hoping and praying for some smooth sailing for awhile. You are all amazing.
Judi & Rob

Anonymous said...

Hope you had a better night. We can't begin to imagine just how tough it is for all of you. Your strength and love as a family is amazing. You are always in our thoughts.
Em and Cam

Anonymous said...

Hope you all had a good sleep last night and a good day today. I give you all my strenght to go with yours and hope that you keep strong and have some better days. Thinking of you all love Sandra Broadbent Xxxxx