Saturday, April 03, 2010

No more dexa

Ethan is still waking every hour during the night. Sometimes for a brief period and sometimes not. This has taken its toll on me and I have been unwell for the last week.

In better news, Ethan is happier during the day. There are still periods of yelling, telling us to shut up and just being cranky, but overall his mood is better. He is still jumping from thing to thing and eating lots. There was a small amount of dexamethasone in the syringe driver which we removed just in case it was aiding the hyperactivity and over eating. It has now been over 24 hours, but he is still eating like a pig. Maybe it will take some time for the effects to wear off.

On Thursday, Ethan's school teachers Jennifer and Mary visited. Jennifer brought out the volcano science experiment for Ethan to do. Ethan enjoys their visits and we appreciate their help and support.

Today was Adele's birthday. A sad but happy day; this will be the last birthday Ethan will share with her. But even with this dark cloud over our heads we got on with the day and celebrated. Everyone had a great day.

This afternoon we took Ethan to VSK. So much has changed since his last admission it took 1.5 hours to handover. The next 2 days will be strange but it will be nice to get some sleep.


Colin & Fiona said...

Thanks for letting me be part of the birthday song today via skype, it was lovely to see everyone and just made me miss you all even more. See you in two weeks, take care of each other. Fi xo

Anonymous said...

Happy birthday Adele. Hope you had a good sleep Jo Mack sure you rest while you can. Lots of love Sandra Broadbent xxxx