three

Ethan has remained wheezy on and off since our last hospital admission but nothing a few puffs of ventolin can't fix!

We had the follow up appointment as planned and the docs are happy with him. They don't need to see him until the 22nd of Feb. He will have an ultrasound and xray as routine follow up on this day.

At the time of the appointment, he had put on 100g and grown nearly 2cm. He is still eating by himself without the tube and is managing quite well. He decreases his intake when wheezy but we just add more calories to compensate.

His cardiac appointment is not until 1st Feb. It is a long wait considering how blue he goes sometimes but at the same time it is good to be home. Catch 22 really. I have spoken to Dr Jim a couple of times and if we get concerned (more than usual) we are to take him to emergency.

Ethan had his birthday yesterday. He is now 3, kinder next year and then school! When looking back at all that has happened it is hard to believe he is only 3. We all had a good day and Ethan was impressed with his presents.



nude drummer boy



Is there money inside??



BMX bandit



Ethan could have his Thomas and eat it!

christmas/new year

Ethan has slowly increased his eating and drinking. A couple of days before Christmas I decided it was time.....I took the tube out. He has managed to have enough oral intake that he has put on some weight and has grown. It is good to see him eat after all these months.

Ethan developed fevers Christmas eve but under no circumstance were we going to hospital. An executive decision was made and I increased his prophylactic antibiotic for a few days. Did the trick and Santa found him!











Today Ethan woke early and he appeared to be in a lot of pain. After some panadol and a cuddle he settled and slept until he woke in more pain. More panadol, this time he didn't settle. Another MMC admission.

On arrival he was still in a lot of pain, his oxygen levels were in the 60's, his heart rate 170, he was breathing high 40's with a lot of effort. There didn't appear to be any reason. His tummy was nice and soft to touch even though it looked bigger, his chest sounded clear and he didn't have a wheeze, he wasn't snotty or didn't have a cough etc. The doctor ordered blood tests, snot test, wee test and x rays.

The x ray showed some changes. Ventolin was given. After the ventolin Ethan was very wheezey. We were admitted with asthma. I don't know why he wasn't wheezey before the ventolin and the doctors couldn't explain it either but it has been seen before. The ventolin must help trigger something. He was having ventolin every 20mins. This made him pretty hyperactive!

After some steroids and more ventolin I asked to go home. I can give ventolin at home. They were OK with this. We have to go back on Tuesday for review and he is to have 4 hourly ventolin before then. If there are any problems we are to go back earlier.