Uncle Colin

Uncle Colin arrived on Thursday night. Ethan had been asking for him to fly home for a couple of weeks. He was so excited so even though Colin wasn't getting to Narre until about 11pm, Ethan forced himself to stay awake. He managed to mumble a hello and then fell asleep. Friday morning he was up and showing off. I hadn't seen Eth put on such a show for a long time. It was great to see.

We had the nurses and Dr come out to the house yesterday because he had required a few break throughs and is now sweating a lot. They decided to increase the syringe driver and commence antibiotics. The morphine was increased by 10mg and the midazolam by 4mg. This is the biggest increase so far. He was also commenced on a treatment dose of antibiotics just in case he is brewing an infection.

I don't know if it was the hike in medicine or just having Uncle Col here but yesterday was a happier day. He still hit the wall and needed a huge day sleep and there were some teary episodes but overall his wake periods were brighter and cheekier. He even had some time to play with his 2 little friends.

I would like to say a special thanks to Sal and Paula. I knew I had every right to be suspicious about your lunch visit. Even though I was laughing at Poppy Syd the pampering was very relaxing. Thank you.