Home Time

The medications in the morphine pump were altered yesterday and 2 more drugs for nausea and pain were commenced. This combination seems to mask things for him as he was a lot happier. He had times of being cheeky and playing with his new Zurg. It is good to see and helps lighten the situation.

Ethan is still not eating and drinking. He looks very skinny and weak. Hopefully over the next few days with the new medicines he will start taking more orally, but I'm not holding my breath.

The urine retention is not an issue when there is nothing to wee! If he starts drinking more and this becomes an issue we have a few passive things to try like warm baths, but if things don't flow, he will need a catheter inserted.

The plan is to go home today and spend as much quality time with our little man before things deteriorate even more. We are taking a drug box home with 1st and 2nd line drugs in it to combat any issues that may arise.