Ethan heads back into Monash tomorrow for a scheduled admission which will start him on the sildenafil medication. There are 3 possible scenarios with taking this drug as it is experimental.
1. It could improve his pulmonary blood flow, therefore increasing oxygenation
2. It could do nothing
3. It could make his pulmonary hypertension worse
During his admission, they will monitor his blood pressure and o2 sats for up to 3 days.
This is the last throw of the dice, so we will see how it goes.
In other news, we went camping over Easter on the banks of the Tarwin River. Ethan was excited about going fishing, but due to lack of rainfall, the fish weren't there, either was the water. We explained that when it rains, the river will fill up with water and the fish will come. On the sunday night, Ethan came darting out of the tent when we had a brief rain shower and was signing to go fishing!
The kids had a great time camping and we will make it an annual event.
Easter Bunny also found us there.
4 comments:
Fingers crossed for a better than imagined result with the new drug. Go Ethan.
Glad camping was good fun, with the Easter Bunny putting in a welcome visit.
Cheers, Judi & Rob
hello Ethan
love Aiden and Connor
Hey, hadn't heard your confirmed admission date - so wan't sure when to visit. let me know how you went when you get a moment. thinking of u. :) Claire
Hi Hanley's,
Sorry its taken us so long to join. Hope all are well as are we. Speak soon.
Love James and Heather.
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