Saturday night was a bad one again. It started with Jo changing his site, which went pretty well. We discussed Jo's handiwork and he agreed she did a good job. After going to bed, he didn't settle and he wanted to get up to pee constantly. He woke early in the morning and was a walking zombie, continuing to try and pee every few mins. Jo gave him a few breakthroughs. This settled him down and he wasn't so angry, but he was still very tired, lethargic and overall very sick. He eventually nodded off at 3pm and has been asleep since. Hopefully he sleeps through and doesn't get up later tonight. His temp measured 38.8 earlier, so the bug is clearly still brewing.
Moving him around in this chair reminds me of an old movie I saw once. A family just tried to emulate that movie recently by trying to put a 'sleeping' relative on a flight home.
4 comments:
Ethan looks very comfortable in his care chair. Hope he and his mum and dad have an uninterupted night's sleep.
Joan and Andy
Sounds like you guys got some sleep. Good. Even that must make you very scared some times. Well done for staying so strong.
Judi & Rob
love the reference to Flight
home
Jennifer
I first became aware of your little boy's plight through a friend of yours. My kids also attend the same school as your girls. I am so devastated for you all. No one should have to go through this much suffering! I wish I could wrap my arms around you all and take away your pain and make everything well again..I would do it in an instant. There are many of us who have not had the pleasure of meeting Ethan but feel for him and send him love and best wishes. I have shed many many tears reading his blog from the beginning, though I'm sure nowhere near as many as you guys. There simply are no words...just know that you have support and we are all thinking of you from a distance. If there's anything that we can do to help you make life a little more bareable all you have to do is put the word out there. Blessed be...
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