Day 6

The temperature from last night didn't settle, Ethan was miserable and very lethargic. During the doctors round I was informed that yesterdays x-ray showed more changes, the respiratory team would need to review him and he would need to be monitored for another couple of days. The respiratory consult was already in the pipework so happened early this morning. They were quick with their assessment and recommendations. An IV was reinserted (this time in the back of his hand) and double antibiotics started.

Eth was febrile all day and thus struggled with everything. Physio was even harder today. He was blue and could hardly participate. We tried a walk but this also made him very cyanotic and I thought he was going to faint.

We now have concerns with his asthma. He is requiring ventolin regularly without much relief. This will be discussed in detail tomorrow. Its an endless circle, the pain relief medication interferes with his asthma, the asthma medications interfere with his heart.

Not all was doom and gloom though. During a down period after a physio session a big box was delivered. Ethan was more excited than a kid in a candy shop. He opened it to be greeted with a pile of balloons, chocolates and a teddy. He did the double fist and jumped on the bed. It was the talk of the day!!